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When you visit the Oceans of Hope U.K. website, it reads, “Oceans of Hope is for people with MS, led by people with MS.” It goes on to say, “Our aim is to offer people from all over the world the opportunity to experience sailing as a way of learning new skills and restoring the self-confidence which can be stolen by MS.”

Oceans of Hope

The folks at Oceans of Hope U.K. can make that claim with high confidence. My guest today is the founder of Oceans of Hope U.K., Robert Munns, who lives with MS himself. Robert had what he describes as a life-changing experience while serving as a member of the crew on what turned out to be an unforgettable sailing adventure. Robert's story is one you won't want to miss.

Today, Oceans of Hope U.K. offers anyone living with MS the opportunity to experience that same personal transformation that Robert experienced.

When you review your MRI scans with your neurologist, the focus is on those white matter lesions that characterize MS. However, study results announced at the 2023 ACTRIMS Forum show that white matter lesions are not the cause of severe MS disability. We're breaking down this game-changing research.

And speaking of game changers, we're sharing the details of a small, portable MRI device that can effectively image MS lesions.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: News from the 2023 ACTRIMS Forum and a story that I hope you find as compelling as I did :22

Study results show that white matter lesions are not the cause of severe MS disability 2:22

A portable less invasive MRI device capable of imaging MS lesions 6:33

Meet Robert Munns, the founder of Oceans of Hope UK 9:25

Share this episode 37:20

Have you downloaded the free RealTalk MS app? 37:41

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RealTalk MS Episode 288
Guest: Robert Munns

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Last week in San Diego, the Americas Committee for Treatment and Research in Multiple Sclerosis convened their annual meeting, the ACTRIMS Forum. One of the highlights of this meeting is the presentation of the Barancik Prize, awarded in recognition of exceptional innovation in MS research.

Dr Ruth Ann Marrie

This year's winner of the Barancik Prize is Dr. Ruth Ann Marrie, a clinician scientist at the University of Manitoba. The Barancik Prize is administered by the National MS Society, and this year's award recognizes Dr. Marrie's landmark discoveries that deepen our understanding of how and when MS evolves.

During the ACTRIMS Forum, Dr. Marrie joined me to discuss her groundbreaking research and the impact it's had on MS care.

Bari Talente

If you're a regular listener, you've probably heard me say that the things that people affected by MS want most — access to quality healthcare, affordable prescription medications, and funding for MS research are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials at the state and federal level. That's why advocacy is a high priority for people affected by MS.

The National MS Society's Public Policy Conference takes place next week, March 6-8, in Washington, D.C. Joining me to discuss how advocacy makes a real difference in influencing pending legislation, while giving us a preview of what we can expect to see and hear at this year's conference, is the National MS Society's Executive Vice-President for Advocacy and Healthcare Access, Bari Talente.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're back from the ACTRIMS Forum and a conversation with this year's winner of the Barancik Prize for innovation in MS research :22

Dr. Ruth Ann Marrie discusses some of her groundbreaking research and its impact on MS care 1:57

We are one week away from the National MS Society's Public Policy Conference in Washington, D.C. 17:18

Bari Talente, the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, discusses the importance of advocacy, while sharing a preview of the legislative issues that MS activists will be advocating for next week on Capitol Hill 18:18

Share this episode 32:25

Have you downloaded the free RealTalk MS app? 32:45