Past Podcast Episodes

Two years ago, the National MS Society made a public commitment to do more to ensure that the MS movement was open to and reflective of everyone affected by MS.

When you stop to consider issues like access to healthcare or MS clinical research, it quickly becomes apparent that diversity, equity, and inclusion aren't only organizational goals for the MS Society. They also address some of the systemic barriers that directly impact the quality of MS care for members of historically marginalized communities who are living with MS.

Joining me in exploring how the MS Society is embedding the principles of diversity, equity, and inclusion into every aspect of the MS movement is the National MS Society's Vice-President of Diversity, Equity, and Inclusion, Neisha Fredericks.

Neisha Fredericks

We're also sharing the details of research conducted at the University of Virginia that identified a specific contributor to the autoimmune response and neuroinflammation that characterize MS.

And we'll give you an up-close and personal illustration of how artificial intelligence (AI) will impact MS research and treatment.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Embedding diversity, equity, and inclusion into the MS movement :22

Researchers identify a neuroinflammation “regulator” lurking in the gut microbiome 1:28

Artificial intelligence will have an impact on virtually every aspect of MS research and care 4:45

Neisha Fredericks, the National MS Society's Vice-President of Diversity, Equity, and Inclusion, discusses the work that's taken place and the work still to be done to ensure that the MS movement is open to and reflective of everyone affected by MS 9:38

Share this episode 32:13

Have you downloaded the free RealTalk MS app? 32:34

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Just copy this link & paste it into your text or email: https://realtalkms.com/286

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: The Activity of the Aryl Hydrocarbon Receptor in T Cells Tunes the Gut Microenvironment to Sustain Autoimmunity and Neuroinflammation
https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.3002000

ChatGPT
https://openai.com/blog/chatgpt

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RealTalk MS Episode 286
Guest: Neisha Fredericks

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of what I call social complications that can feel even more challenging to navigate than MS itself.

Just think back to the awkwardness of your pre-teen and teenage years. The pressures of school, friends, and dating are a lot for any kid to contend with. And that's without having to think about living with a chronic disease like multiple sclerosis.

Joining me for what I consider a masterclass in pediatric MS is Dr. Brenda Banwell. Dr. Banwell is Chief of the Division of Neurology and Co-Director of the Neuroscience Center at Children's Hospital of Philadelphia, and one of the foremost experts on pediatric MS in the world.

Dr. Brenda Banwell

We're also sharing the details of very encouraging research that sheds new light, as well as provides new evidence, about primary progressive MS, suggesting a new pathway for future treatments.

We'll tell you about Healthy Aging in MS, the new clinical and research initiative at the University of Texas at Austin Dell Medical School.

And we'll share what the latest research is telling us when it comes to answering the question, “Should you discontinue your disease-modifying therapy once you turn 60?”

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: It's a masterclass in pediatric MS :22

Researchers take a major step forward in understanding and potentially treating primary progressive MS 2:01

University of Texas at Austin Dell Medical School launches Healthy Aging in MS initiative 6:49

Is it safe to stop your disease-modifying therapy as you age? Here's what the latest research is telling us 8:58

Dr. Brenda Banwell takes us on a deep dive into pediatric-onset MS 13:05

Share this episode 37:05

Have you downloaded the free RealTalk MS app? 37:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/285

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Cerebrospinal Fluid Immunoglobulins in Primary Progressive Multiple Sclerosis are Pathogenic
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad031/7024973

STUDY: Discontinuation of Disease-Modifying Therapy in MS Patients Over 60 Years Old and Its Impact on Relapse Rate and Disease Progression
https://sciencedirect.com/science/article/abs/pii/S0303846723000288

RealTalk MS Episode 255: Aging with MS with Dr. John Corboy
https://realtalkms.com/255

PEDIATRIC MS RESOURCES:

National MS Society Information and Resources on Pediatric MS
https://nationalmssociety.org/pediatricms

Oscar the MS Monkey In-Person Camp and Retreats for Kids with MS and Their Families
https://mroscarmonkey.org

Network of Pediatric Multiple Sclerosis Centers
https://usnpmsc.org

iConquer MS Kids & Teens
https://kidsandteens.iconquerms.org/kidsandteens