Past Podcast Episodes

A quick scan of the news on any given day should remind all of us that natural disasters can strike anywhere at any time. Whether it's massive snowstorms, earthquakes, wildfires, hurricanes or floods, no one is immune when Mother Nature chooses to act up. That's why being prepared for a natural disaster is important for everyone. And if you're living with MS, it's especially important for you to have your family's emergency preparedness plan in place.

Senior Medical Advisor to National Disaster Operations at the American Red Cross, Mary Casey-Lockyer, joins me to talk about the things that people living with MS should include in their emergency preparedness plan.

We're also talking with Dr. Aaron Kesselheim, a researcher at Harvard's Brigham and Women's Hospital. And if you're on Lemtrada, Dr. Kesselheim could use your help.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Disaster Preparedness :22

If you're on Lemtrada, Dr. Aaron Kesselheim could use your help 1:43

Mary Casey-Lockery discusses disaster preparedness for people living with MS 10:49

Share this episode 31:22

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Just copy this link & paste it into your text or email: https://realtalkms.com/274

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

For information about participating in Dr. Kesselheim's Lemtrada study
Email: asarpatwari@bwh.harvard.edu or akesselheim@bwh.harvard.edu
Phone: (617) 278-0930

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group
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https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

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RealTalk MS Episode 274
Guest: Dr. Aaron Kesselheim and Mary Casey-Lockyer

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so painful and debilitating that it keeps you from moving. Dr. Michelle Cameron joins me in this episode to discuss what spasticity is and how to best manage it.

Dr. Michelle Cameron

Dr. Cameron is a neurologist and physical therapist, a professor in the Department of Neurology at Oregon Health & Science University, Interim Chief of Neurology at the VA Portland Healthcare System, and Co-Director of the VA MS Center of Excellence West.

We're also talking about a new framework for thinking and talking about MS that's been proposed by an international panel of MS experts.

We'll tell you about a study that looked at polypharmacy and MS (Of course, we'll also tell you what polypharmacy is and why you should be aware of it!)

We'll share the details around the discovery of human antibodies that have been shown to prevent Epstein-Barr infection (And we'll explain why this could be incredibly important)

If you're an MS caregiver, or you know one, I'm asking for just 5 minutes of your time.

We're celebrating National Caregivers Month by breaking down the details of the National Family Caregiving Strategy that was recently submitted to Congress.

And we're celebrating the indomitable quality of the human spirit by sharing the story of Eric Domingo Roldan and his mom, Sylvia.

We have a lot to talk about! Are you ready for RealTalk MS??!

Thanksgiving is two days away! :22

This Week: Managing Spasticity 1:02

Experts propose a new framework for thinking about and talking about MS 2:07

Polypharmacy and MS 5:55

Researchers identify antibodies that prevent Epstein-Barr Virus infection 9:02

If you're an MS caregiver, or you know one, can I have 5 minutes of your time? 11:30

The 2022 National Family Caregivig Strategy 13:55

Eric Domingo Roldan and his mom, Sylvia, make it into the Guinness Book of World Records 16:34

Dr. Michelle Cameron discusses spasticity and MS 18:40

Share this episode 33:55

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/273

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Multiple Sclerosis Progression: Time for a New Mechanism-Driven Framework
https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(22)00289-7/fulltext

Tremlett's MS Research Explained: Polypharmacy and Multiple Sclerosis: A Population-Based Study
https://tremlettsmsresearchexplained.wordpress.com/2022/10/27/polypharmacy-and-multiple-sclerosis-a-population-based-study/

STUDY: Polypharmacy and Multiple Sclerosis: A Population-Based Study
https://journals.sagepub.com/doi/full/10.1177/13524585221122207

RealTalk MS Episode 229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi
https://realtalkms.com/229

RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding the Impact of this Breakthrough Research with Dr. Bruce Bebo
https://realtalkms.com/231

STUDY: Epstein-Barr Virus gH/gL Has Multiple Sites of Vulnerability for Virus Neutralization and Fusion Inhibition
https://cell.com/immunity/fulltext/S1074-7613(22)00544-1

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

2022 National Strategy to Support Family Caregivers
https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf

Eric Domingo Roldan's Instagram Handle
@eeRiicbcn