Past Podcast Episodes

Last week, over 7,000 MS researchers and clinicians from more than 100 countries traveled to Amsterdam to attend the 2022 ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) Congress, the largest MS research conference in the world.

Dr. Bruce Bebo

As has become an annual ECTRIMS tradition on RealTalk MS, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and I took up our vantage point on the steps right outside of the convention center to discuss the research that captured Dr. Bebo's attention.

We have a lot to talk about! Are you ready for RealTalk MS??!

Greetings from the 2022 ECTRIMS Congress! :22

If you're listening in the U.S., don't forget to vote next Tuesday 1:26

Dr. Bruce Bebo shares the research that captured his attention at ECTRIMS 3:25

Share this episode 20:43

Download the RealTalk MS app for your iOS or Android device 21:03

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/270

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I've always thought of the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

National MS Society: Your Right to Vote and Polling Place Accessibility
https://nationalmssociety.org/Get-Involved/Advocate-for-Change/Take-Action/Voter-Info

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RealTalk MS Episode 270
Guest: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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A couple of months ago, the Inflation Reduction Act was signed into law. And while it touches on many different areas, it will be remembered as the most consequential healthcare bill since the Affordable Care Act. From the emails I've received, I know that many of you are wondering how and when this new law will impact what you pay for your prescription medications.

The National MS Society's Vice-President of Advocacy, Steffany Stern, and MS activist Judy Wilson, join me in this episode to explain how this new law benefits people who are living with MS, who, among everyone living with MS, will see some of those benefits first, and when you will begin to see those benefits.

We're also talking about a study that showed people with progressive MS are four times more likely to experience serious infection requiring hospitalization, compared to people with relapsing-remitting MS.

We'll tell you about a machine-learning algorithm that can predict MS patient outcomes when it comes to symptoms like fatigue, depression, and sleep disturbance.

And we'll share some very sobering survey results from the MS Society in the U.K.

We have a lot to talk about! Are you ready for RealTalk MS??!

Greetings from Amsterdam! ECTRIMS kicks off this week! :22

This Week: How the Inflation Reduction Act Will Help You 1:02

People with primary progressive MS are 4 times more likely to experience serious infection 2:12

An app plus artificial intelligence predicts MS patient outcomes 5:03

The MS Society in the U.K. releases sobering survey results 9:33

MS Society V.P. of Advocacy Steffany Stern and MS activist Judy Wilson break down the specific benefits of the Inflation Reduction Act 12:17

Share this episode 33:36

Download the RealTalk MS app for your iOS or Android device 33:56

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/269

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

National MS Society: Become an MS Activist
https://nationalmssociety.org/advocacy

STUDY: Serious Infection in Patients with Relapsing and Progressive Forms of Multiple Sclerosis: A German Claims Data Study
https://msard-journal.com/article/S2211-0348(22)00749-0/fulltext

STUDY: Predicting Multiple Sclerosis Outcomes During COVID-19 Stay-at-Home Period: Observational Using Passively Sensed Behaviors and Digital Phenotyping
https://mental.jmir.org/2022/8/e38495