Past Podcast Episodes – Page 65

Episode 266: Making Life with MS Easier with Dr. Kathy Zackowski

Living with MS can make everyday run-of-the-mill tasks like bathing, cooking, and driving more challenging than they have to be. The National MS Society's Associate Vice President of Research, Dr. Kathy Zackowski, joins me with a whole list of simple adjustments and easy modifications that you can make that will make the things you do every day easier. Get ready to take some notes!

Dr. Kathy Zackowski

A lot of you have reached out to me, sharing your thoughts about Selma Blair competing on Dancing with the Stars. Collectively, your emails and DMs illustrate the vast diversity of opinion regarding Selma's latest adventure. In this week's episode, I'm sharing some of my thoughts.

I've always said that MS doesn't affect individuals — it affects families. This week, we're talking about a study that focused on anxiety, depression, and stress communication between people living with MS and their partners.

We'll also tell you about a study that makes the case for using artificial intelligence to accurately predict EDSS scores for people living with MS.

And we'll tell you about a drug that's been studied in clinical trials for cancer that may also show promise as a remyelination therapy.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Selma Blair on DWTS, I'm back from the 2022 Caregiving Research Conference, and simple adjustments & minor modifications that can make life with MS easier :22

Researchers analyzed anxiety, depression, and stress communication in couples affected by MS 3:28

Can artificial intelligence predict an individual's EDSS score as accurately as their neurologist? 7:37

Repurposing a drug that's been studied in clinical trials for cancer may be a step forward in remyelination for people living with MS 12:27

Dr. Kathy Zackowski returns to the podcast with a boatload of simple adjustments and minor modifications that can make managing your everyday tasks a lot easier 15:38

Share this episode 36:55

Download the RealTalk MS app for your iOS or Android device 37:16

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/266

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Psychosocial Impact of Multiple Sclerosis on Couples: Relationship Between Anxiety, Depression, and Stress Communication of Both Partners
https://journals.sagepub.com/doi/10.1177/21501319221119142

STUDY: Validation of a Machine-Learning Approach to Estimate Expanded Disability Status Scale Scores for Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/20552173221108635

STUDY: Inhibition of Chk2 Promotes Neuroprotection, Axon Regeneration, and Functional Recovery After CNS Injury
https://science.org/doi/10.1126/sciadv.abq2611

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RealTalk MS Episode 266
Guest: Dr. Kathy Zackowski

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Living with MS comes with its own set of sometimes significant challenges. But being in the dark, unaware of the noteworthy advances being made in MS research is one challenge that we're learning to overcome.

Sharon Roman

Sharon Roman is a patient-partner and writer for the British Medical Journal Group. Sharon lives with MS and she also writes a blog called Tremlett's MS Research Explained. The blog features plain-English posts detailing the research being done by Professor Helen Tremlett and her team. Professor Tremlett is the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia.

Sharon joins me to talk about Professor Tremlett's pioneering research on the prodromal phase of MS, and to discuss why it's important to make MS research accessible and understandable to everyone in the MS community.

We're also sharing study results that show the key to reducing MS fatigue could be a trip to the gym.

We'll tell you about a study that measured improvements in physical disability, fatigue, and health-related quality of life among people with MS after they received stem cell therapy.

We'll tell you about the significant differences in the gut microbiome of people living with MS and what that might mean for potential new treatments.

We'll tell you about a study that discovered an interesting difference in immune cells among people living with MS. And we'll explain the riddle this poses for scientists.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The importance of making MS research accessible to people affected by MS :22

A study shows that high-intensity resistance training improves MS fatigue 2:44

A study measures the long-lasting benefits of aHSCT for people living with MS 6:31

A study identifies differences in specific bacteria levels in the gut microbiome of people living with MS 9:59

A study reveals differences in immune cells among people living with MS 13:22

Sharon Roman discusses the importance of making MS research accessible to people affected by MS 18:43

Share this episode 32:04

Download the RealTalk MS app for your iOS or Android device 32:24

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/265

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Tremlett's MS Research Explained
https://tremlettsmsresearchexplained.wordpress.com

STUDY: High-Intensity Resistance Training in People with Multiple Sclerosis Experiencing Fatigue: A Randomised Controlled Study
https://msard-journal.com/article/S2211-0348(22)00613-7/fulltext

STUDY: Impact of Autologous HSCT on the Quality of Life and Fatigue in Patients with Relapsing Multiple Sclerosis
https://www.nature.com/articles/s41598-022-19748-7

National MS Society: aHSCT and MS
https://nationalmssociety.org/Treating-MS/aHSCT

STUDY: Gut Microbiome of Multiple Sclerosis Patients and Paired Household Controls Reveal Associations with Disease Risk and Course
https://cell.com/cell/fulltext/S0092-8674(22)01115-1

STUDY: Broader Epstein-Barr Virus-Specific T Cell Receptor Repertoire in Patients with Multiple Sclerosis
https://rupress.org/jem/article/219/11/e20220650/231431/Broader-Epstein-Barr-virus-specific-T-cell