One of the realities of living with MS is that you're often dealing with invisible symptoms. And because symptoms like numbness and tingling, fatigue, depression, vision issues, and pain aren't apparent to others, it can be hard for people around you to understand what MS is all about and, specifically, what you might be struggling with.
Kathy Costello returns to the podcast to discuss how to best manage the invisible symptoms of MS and how you can constructively shut down those conversations that begin with, “But you look so healthy!“.
We're also sharing the results of a study that focused on the results of 50 different studies about the effects of autologous hematopoietic stem cell therapy (aHSCT) on people with MS.
We'll tell you about the National MS Society's $19 million dollar investment in 40 new MS research projects.
It's August, so we have to talk about Burgers to Beat MS!
And we'll give you the details about how you can participate in testing a new product that combines technology and music to improve gait problems for people living with MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
Living with the invisible symptoms of MS :22
A study of 50 studies about the effectiveness of aHSCT in treating MS 1:36
National MS Society invests $19 million in 40 new MS research projects 4:45
It's that time of year again…it's Burgers to Beat MS! 7:03
MedRhythms is asking for your help 8:15
Kathy Costello discusses the invisible symptoms of MS 9:57
Share this episode 32:04
Download the RealTalk MS app for your iOS or Android device 32:25
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/258
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
Can Do MS
https://cando-ms.org
aHSCT in MS
https://www.nationalmssociety.org/Treating-MS/aHSCT#section-0
Autologous Hematopoietic Stem Cell Transplantation in Multiple Sclerosis: A Systemic Review and Meta-Analysis
https://link.springer.com/article/10.1007/s40120-022-00389-x
National MS Society Invests $19 Million to Launch 40 New MS Research Projects to Drive Pathways to Cures
https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/new-research-summer-2022.pdf
Burgers to Beat MS
https://BurgersToBeatMS.ca
For More Information about MedRhythms Volunteer Testing Program
Email: appliedresearch@medrhythms.com
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review
http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 258
Guest: Kathy Costello
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
