Past Podcast Episodes

Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of what I call social complications that can feel even more challenging to navigate than MS itself.

Just think back to the awkwardness of your pre-teen and teenage years. The pressures of school, friends, and dating are a lot for any kid to contend with. And that's without having to think about living with a chronic disease like multiple sclerosis.

Joining me for what I consider a masterclass in pediatric MS is Dr. Brenda Banwell. Dr. Banwell is Chief of the Division of Neurology and Co-Director of the Neuroscience Center at Children's Hospital of Philadelphia, and one of the foremost experts on pediatric MS in the world.

Dr. Brenda Banwell

We're also sharing the details of very encouraging research that sheds new light, as well as provides new evidence, about primary progressive MS, suggesting a new pathway for future treatments.

We'll tell you about Healthy Aging in MS, the new clinical and research initiative at the University of Texas at Austin Dell Medical School.

And we'll share what the latest research is telling us when it comes to answering the question, “Should you discontinue your disease-modifying therapy once you turn 60?”

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: It's a masterclass in pediatric MS :22

Researchers take a major step forward in understanding and potentially treating primary progressive MS 2:01

University of Texas at Austin Dell Medical School launches Healthy Aging in MS initiative 6:49

Is it safe to stop your disease-modifying therapy as you age? Here's what the latest research is telling us 8:58

Dr. Brenda Banwell takes us on a deep dive into pediatric-onset MS 13:05

Share this episode 37:05

Have you downloaded the free RealTalk MS app? 37:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/285

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Cerebrospinal Fluid Immunoglobulins in Primary Progressive Multiple Sclerosis are Pathogenic
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad031/7024973

STUDY: Discontinuation of Disease-Modifying Therapy in MS Patients Over 60 Years Old and Its Impact on Relapse Rate and Disease Progression
https://sciencedirect.com/science/article/abs/pii/S0303846723000288

RealTalk MS Episode 255: Aging with MS with Dr. John Corboy
https://realtalkms.com/255

PEDIATRIC MS RESOURCES:

National MS Society Information and Resources on Pediatric MS
https://nationalmssociety.org/pediatricms

Oscar the MS Monkey In-Person Camp and Retreats for Kids with MS and Their Families
https://mroscarmonkey.org

Network of Pediatric Multiple Sclerosis Centers
https://usnpmsc.org

iConquer MS Kids & Teens
https://kidsandteens.iconquerms.org/kidsandteens

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 285
Guest: Dr. Brenda Banwell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

MS can sometimes feel isolating. And the ironic thing about those feelings of isolation is that you can experience them even when you're with other people. It's the feeling that, while everyone is being supportive, nobody really gets it. They've never experienced what it's like to actually live with MS. That's why connecting with others who are living with MS can be such a difference-maker.

My guests in this episode are Debby Bennett, the Manager of Community Engagement at the National MS Society, and Ricky Maxwell, an MS Society self-help group member and leader, and we're talking about how and where you can find support and connect with others who can better understand some of the things you might be going through.

We're also sharing the details of the National MS Society's latest $7.8 million dollar investment in new research projects aimed at stopping MS progression, restoring lost function, and ending MS forever.

We'll tell you about a study that revealed a link between sleep and cognitive issues among people living with MS.

You'll hear about the results of a study that showed how cognitive rehabilitation therapy and mindfulness might improve cognitive dysfunction for people with MS.

We'll tell you about this year's recipient of the Barancik Prize for Innovation in MS Research (and we'll explain what makes her such an outstanding choice!)

The National MS Society's 2023 Pathways to Wellness virtual program is just two days away! We'll tell you how and where you can still register for the event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The value of connecting with others who are living with MS :22

The National MS Society invests $7.8 million in new research projects 1:49

Research reveals link between sleep and cognitive issues among people with MS 4:17

Study shows that cognitive rehabilitation therapy and mindfulness are effective in improving cognition among people with MS 6:58

Dr. Ruth Ann Marrie is this year's recipient of the Barancik Prize for Innovation in MS Research 9:42

The 2023 Pathways to Wellness virtual event is two days away 12:57

Debby Bennett and Ricky Maxwell discuss how and why you'll want to connect with others who are living with MS 14:43

Share this episode 27:09

Have you downloaded the free RealTalk MS app? 27:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/284

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Research Summary: Fourteen New Research Projects Funded by the National MS Society
https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/summaries-of-newly-funded-research-projects-january-2023.pdf

RealTalk MS Episode 238: The Pathways to Cures Research Roadmap with Dr. Carol Whitacre and Professor Alan Thompson
https://realtalkms.com/238

STUDY: Pathways Between Multiple Sclerosis, Sleep Disorders, and Cognitive Function: Longitudinal Findings from the Nurses' Health Study
https://journals.sagepub.com/doi/epub/10.1177/13524585221144215

RealTalk MS Episode 259: How Lack of Sleep Affects MS (And What You Can Do About It!) with Dr. Katie Siengsukon
https://realtalkms.com/259

STUDY: Cognitive Rehabilitation and Mindfulness Reduce Cognitive Complaints in Multiple Sclerosis (REMIND-MS): A Randomized Controlled Trial
https://www.sciencedirect.com/science/article/pii/S2211034823000330

Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program
https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness