Past Podcast Episodes

In addition to its physical symptoms, MS can also affect your emotional well-being. Depression, persistent anxiety, and extreme irritability are common. And, just like the physical symptoms of MS, they require treatment. But people living with MS tend to focus on their physical health and, too often, end up neglecting their mental health.

Dr. Dawn Ehde joins me to talk about maintaining and strengthening your emotional well-being when you're living with MS, and she'll introduce you to a new resource that you're going to want to know about.

This Thursday, the National MS Society is hosting the virtual Hispanic/Latinx MS Experience Summit. The event is free and the sessions will be available in both English and Spanish. We're sharing the details! We'll even tell you how and where to register!

We'll tell you about a study that compared how low-efficacy and high-efficacy disease-modifying medications impact brain atrophy and disease activity.

We'll share study results that showed how choosing to be on disease-modifying medications affects mortality.

And we'll tell you about a study that focused on how MS impacts your ability to show up at work.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Managing your mental health :22

The Hispanic/Latinx MS Experience Summit takes place this Thursday, Sept 15. Here's how to register 2:20

A study compares low-efficacy and high-efficacy disease-modifying medications 3:40

A study assesses the association between being on a disease-modifying medication and surviving 7:39

A study shows that that people with MS miss work more than twice as much as healthy people 9:56

Dr. Dawn Ehde discusses how you can maintain and strengthen your emotional well-being and she introduces a new resource that you're going to want to know about 14:40

Share this episode 31:06

Download the RealTalk MS app for your iOS or Android device 31:27

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/263

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

What to Expect from Mental Health Care: A Guide for People with MS
https://www.nationalmssociety.org/getmedia/a4fa7de4-2196-4b6d-9dd5-e804ecfdb119/CD_pubs_mentalHealthGuidance_0422_FINAL.pdf

National MS Society Hispanic/Latinx MS Experience Summit
https://nmss.6connex.com/event/HispanicandLatinx/Login

STUDY: High-Efficacy Therapy Reduces Subcortical Grey Matter in Japanese Patients with Relapsing-Onset Multiple Sclerosis: A 2-Year Cohort Study
https://www.sciencedirect.com/science/article/abs/pii/S2211034822005855

STUDY: Disease-Modifying Drugs for Multiple Sclerosis and Association with Survival
https://nn.neurology.org/content/9/5/e200005

RealTalk MS Episode 211: The Ins and Outs of Employment with MS with Dr. Phillip Rumrill
https://realtalkms.com/211

STUDY: Work Productivity Loss Among Adults Aged 18-64 Years with Multiple Sclerosis in the United States: A Propensity Score Matched Study
https://www.sciencedirect.com/science/article/abs/pii/S1551741122002091?via%3Dihub

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 263
Guest: Dr. Dawn Ehde

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

The conversation between a doctor and patient is evolving from a time when that conversation was often limited to the doctor prescribing a particular disease-modifying medication and the patient silently nodding their head in agreement to something much more closely resembling a real conversation.

Shared decision-making offers the patient an opportunity to discuss their treatment goals, explain their risk tolerance, and talk about their comfort level with side effects.

But not every neurologist, nurse practitioner, or MS specialist has made the transition to shared decision-making. Some haven't even heard of it. And some patients worry that shared decision-making means they have more work to do in preparing for an appointment with their healthcare provider.

Dr. Marijean Buhse joins me to walk us through how shared decision-making works for people living with MS — and what to do if it isn't working for you.

We'll also tell you where you can catch the video replay of an MS Society webcast that explains how and when the new drug pricing law will impact the cost of your MS medications if you're on Medicare.

We'll share the registration details for next week's Hispanic/Latinx MS Experience Summit

We'll tell you about a new research collaboration between iConquer MS, the National MS Society, and Quest Diagnostics

We'll share study results that point to a novel pathway to myelin repair.

We'll share study results that indicate the rate of MS in a country may have less to do with latitude and sun exposure and more to do with healthcare spending.

And we're giving a shout-out to A&W Canada and the MS Society of Canada for raising $1.8 million during the Burgers to Beat MS event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: How shared decision-making shapes your MS treatment plan :22

You can catch the replay of the MS Society's webcast or read the one-page “explainer” about how and when the new drug pricing law will impact your MS medications if you're on Medicare 2:47

The Hispanic/Latinx MS Experience Summit takes place on Sept 15. Here's how to register 3:41

iConquer MS teams up with the National MS Society and Quest Diagnostics for a study that will track the long-term effects of COVID-19 vaccines on b-cells and T-cells among people on anti-cd20 medications 5:14

A research team at Oregon Science & Health University are exploring a unique pathway to remyelination, with promising early results 7:41

A study shows that the rate of MS in different countries may have less to do with latitude and more to do with healthcare spending 11:57

Burgers to Beat MS beats its goal and raises $1.8 million dollars 15:06

Dr. Marijean Buhse discusses how shared decision-making works and what to do if it isn't working for you 16:45

Share this episode 30:38

Download the RealTalk MS app for your iOS or Android device 30:59

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/262

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

WEBCAST REPLAY: What Does the New Drug Pricing Law Mean for You?
https://www.youtube.com/watch?v=xQ0HueOmo0U

National MS Society Explainer: What Does the New Drug Pricing Legislation Mean for People with MS?
https://www.nationalmssociety.org/getmedia/6fa7aae3-0543-4884-b783-359b0df683aa/IRA-Drug-Pricing-Timeline.pdf

National MS Society Hispanic/Latinx MS Experience Summit
https://nmss.6connex.com/event/HispanicandLatinx/Login

STUDY: A Modified Flavonoid Accelerates Oligodendrocyte Maturation and Functional Remyelination
https://onlinelibrary.wiley.com/doi/10.1002/glia.23715

STUDY: Association of Multiple Sclerosis Prevalence With Sociodemographic, Health Systems, and Lifestyle Factors on a National and Regional Level
https://n.neurology.org/content/early/2022/08/24/WNL.0000000000200962