Past Podcast Episodes

Last week, the National MS Society and RealTalk MS announced a new partnership. And we're definitely talking about it!

My guest is Dr. Soha Saleh, a research scientist at Kessler Foundation's Center for Mobility and Rehabilitation Engineering Research, and we're talking about her innovative research in understanding how MS impacts dual-tasking — something that all of us do, all day long.

We'll tell you about the newly announced Weill Neurohub, and why that's such promising news for people affected by MS.

We're also talking about the price of Vumerity, the new oral disease-modifying therapy, and suggesting some of the things to keep in mind as we consider steps to ensure that everyone living with MS has access to affordable prescription medications.

And we'll tell you about the alternative to EDSS that's been proposed by the Multiple Sclerosis Outcome Assessments Consortium.

We have a lot to talk about! Are you ready for RealTalk MS??!

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A BIG Announcement About RealTalk MS! 1:19

Introducing the Weill Neurohub 3:36

The Price of Vumerity 5:47

An Alternative to EDSS Has Been Proposed 9:58

My Interview with Dr. Soha Saleh 13:49

How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa 29:31

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SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/116

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

The National MS Society & RealTalk MS Announce a Partnership

The Weill Neurohub

Evaluation of Multiple Sclerosis Disability Outcome Measures Using Pooled Clinical Trial Data

The Kessler Foundation Center for Mobility and Rehabilitation Engineering Research

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 116
Hosted By: Jon Strum
Guests: Dr. Soha Saleh

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, KesslerFdn, RealTalkMS

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My guest this week is Dr. Mary Bailey, a neurologist specializing in MS care at the Mandell Center for Multiple Sclerosis in Hartford, Connecticut, and we're talking about some of the changes that occur as relapsing-remitting MS transitions to secondary progressive MS.

Since about 80% of the people living with relapsing-remitting MS will experience that transition to secondary progressive MS, I think it's an important conversation to have.

Since yesterday was Veterans Day in the United States, we're talking about the connection between Veterans and MS and the innovative MS research being funded by the Department of Defense.

We've received some listener requests about this, so we're revisiting our conversation with Dr. Mitzi Joi Williams about minority participation in MS research. We'll also point you toward a replay of a webinar that Dr. Williams hosted about this important topic.

We'll give you the details about a First Descents ski trip to Crested Butte, Colorado that's been created specifically for young adults who are living with MS. And it's FREE! (And, of course, we'll tell you where and how to begin the registration process!)

You'll find out where to catch the video replay of Progress in MS Research Live Update 2019 that was live-streamed last week by MS Research Australia. The program features 4 outstanding MS experts and a LOT of great information!

November is National Family Caregivers Month, and we're talking about a very worthwhile short video that gives us what I think is a very authentic peek at some of the things that couples affected by MS go through every day. And it also provides some excellent tips on how both partners can best manage their relationship when one of them becomes the other's caregiver.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Greetings from the 4th Annual National Caregiving Conference :40

Looking Ahead to the National MS Society Leadership Conference 1:09

MS & U.S. Military Veterans 2:43

Video Offers Care Partner Tips & Inspiration 4:40

First Descents is Offering a FREE ski trip to Colorado to Young Adults Living with MS 5:33

Catch the Progress in MS Research Update 2019 Video Replay 7:32

Minority Participation in MS Research with Dr. Mitzi Joi Williams 8:41

My Interview with Dr. Mary Bailey 18:23

How You Can Share This Episode of RealTalk MS 26:37

How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa 27:09

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/115

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

U.S. Military Veterans & MS

VIDEO: MS and Care Partnership — Tips & Inspiration

First Descents Skiing at Crested Butte

VIDEO REPLAY: Progress in MS Research Live Update 2019

VIDEO: Addressing Common Misconceptions About Research and Clinical Trials in Minority Groups

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 115
Hosted By: Jon Strum
Guests: Dr. Mary Bailey

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, FirstDescents, RealTalkMS

Privacy Policy

Episode 116: Dual-Tasking & MS with Dr. Soha Saleh

Episode 115: Secondary-Progressive MS with Dr. Mary Bailey