RealTalk MS

Past Podcast Episodes

Episode 112: The MSIF People with MS Forum with Dr. Laura Musambayi and Gabriela Hidalgo


I'm back from attending the MS International Federation's People With MS Forum in Athens, Greece, and it was a remarkable few days spent with some truly remarkable people. In this episode of RealTalk MS, you'll meet two of those remarkable people. First, we'll talk with Dr. Laura Musambayi, the founder of the MS Association of Kenya. Dr. Musambayi will share her experiences in a country of 50 million people, with just 20 neurologists, and no access to disease-modifying therapy.

Dr. Laura Musambayi

Then, you'll meet Gabriela Hidalgo, a Project Manager at Esclerosis Multiple España, who will tell us about a very successful program designed to reduce isolation and depression and re-connect people affected by MS with their lives.

We're also talking about an article that got my attention last week. Professor Alan Thompson wrote that We Can Stop MS — And This Is How. (HINT: He's 100% right!)

We have a lot to talk about! Are you ready for RealTalk MS??!
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Reporting Back from the MSIF People with MS Forum  :22

We Can Stop MS — And This Is How  2:15

My Conversation with Dr. Laura Musambayi  9:19

My Conversation with Gabriela Hidalgo   18:03

Subscribe to RealTalk MS  28:47

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review 

MS International Federation

We Can Stop Multiple Sclerosis — And This Is How

Donate Online to the National MS Society

Donate Online to the UK MS Society's #StopMS Campaign

Multiple Sclerosis Association of Kenya

Esclerosis Multiple España

Give RealTalk MS a Rating & Review 

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 112
Hosted By: Jon Strum
Guests: Dr. Laura Musambayi and Gabriela Hidalgo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, StopMS, mssocietyuk, MSIntFederation, MSAssocKe, Esclerosiseme, RealTalkMS

Episode 111: The Changing Face of MS Over 20 Years — The CLIMB Study with Dr. Tanuja Chitnis


For almost 20 years, the CLIMB Study has been following thousands of MS patients, discovering so many aspects of multiple sclerosis and documenting how the disease changes over time. My guest is Dr. Tanuja Chitnis, Director of the CLIMB Study, Director of the Partners Pediatric Multiple Sclerosis Center at MassGeneral Hospital for Children, as well as the Director of the Translational Neuroimmunology Research Center at Brigham and Women's Hospital.

Dr. Tanuja Chitnis

We're also talking about an emerging topic that will continue to grow in importance and impact — aging and MS. We're taking a deep dive into new changes in Medicare and how these changes will affect people living with MS. We'll tell you about a study that's going to evaluate how different types of exercise impact specific MS symptoms. And if you're living with MS in Canada, we'll remind you of what you have to do before you vote next week.
We have a lot to talk about! Are you ready for RealTalk MS??!
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What I'll Be Talking About at the MSIF Forum  :22

Aging with MS  1:26

A Deep Dive Into New Improvements to Medicare & How They Will Affect People Living with MS  5:05

The MS Society of Canada's #MakeMSMatter Campaign   14:06

Studying Exercise & Its Effect on Specific MS Symptoms  15:14

My Interview with Dr. Tanuja Chitnis  17:55

Subscribe to RealTalk MS  29:46

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review 

The CLIMB Study

MS Society of Canada's #MakeMSMatter Campaign

University of Washington Clinical Trial testing 2 non-pharmacological approaches to managing MS-related pain delivered via online video conference.
Email: msadapt@uw.edu 
Phone: (855) 320-8230

Kessler Foundation MS Research

Give RealTalk MS a Rating & Review 

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 111
Hosted By: Jon Strum
Guest: Dr. Tanuja Chitnis

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, KesslerFdn, MakeMSMatter, RealTalkMS