Past Podcast Episodes

Five years ago, James Beard Award-winning chef Chris Shepherd decided to hold a barbecue event in his restaurant's parking lot, to raise money for the National MS Society. Today, the Southern Smoke Festival has grown into the largest 3rd party MS Society fundraising event in the United States, and with the 5th Annual Southern Smoke Festival just a few weeks away, we're talking with Chris about how this event got its start, and how it's grown to be one of the most noteworthy culinary events in the country.

We're also talking about the new vaccination guidelines (including flu shots!) that were just published by the American Academy of Neurology for people living with MS. We'll tell you about a study that gives you one more reason to start disease-modifying therapy early…and stay on it! We'll also tell you about a study that shows the cost of MS disease-modifying therapy has increased 7X over just 10 years for Medicare patients. And we've found one more study that demonstrates how people with more advanced progressive MS can still benefit from physical rehabilitation.

We have a lot to talk about! Are you ready for RealTalk MS??!

___________

Where You Can Find Me in September :32

American Academy of Neurology Issues Vaccination Guidelines for People Living with MS 4:39

The Long-Term Effects of Disease-Modifying Therapy 6:15

DMT Costs Increase 7X in 10 Years for Medicare Patients 7:49

Upper-Limb Task-Oriented Rehab Shows Benefits for People Living with Progressive MS 11:56

My Interview with Chris Shepherd 15:01

Subscribe to RealTalk MS or Just Ask Alexa 27:13

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

Southern Smoke Festival

Practice Guideline Update Summary: Vaccine-Preventable Infections and Immunization in Multiple Sclerosis — Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology

The Long-Term Effects of Disease-Modifying Therapies on Disability in People Living with Multiple Sclerosis: A Systematic Review and Meta-Analysis

Trends in Prices, Market Share, and Spending on Self-Administered Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D

Preserved Brain Functional Plasticity After Upper Limb Task-Oriented Rehabilitation in Progressive Multiple Sclerosis

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 105
Hosted By: Jon Strum
Guest: Chris Shepherd

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, SouthernSmokeTX, RealTalkMS

Fatigue isn't only a common symptom of MS; it's also one of the most disruptive symptoms of MS. It's hard to be out living life when you're trying to overcome that feeling of just not having any gas left in the tank. My guest is Dr. Ekaterina Dobryakova, a research scientist at the Kessler Foundation's Center for Traumatic Brain Injury Research, where she conducts research in cognitive dysfunction caused by traumatic brain injury and multiple sclerosis. Dr. Dobryakova's research has shown that there may be a behavioral intervention — a treatment that doesn't involve any drugs — that can effectively reduce MS fatigue.

We're also talking about the letter that former NBA championship-winning head coach David Blatt wrote, announcing his primary progressive MS diagnosis. We'll tell you about a discovery at UCLA that may explain why women are three times more likely than men to develop MS. And we'll tell you how you can join more than 4,600 people living with MS and be a part of an epic MS study from the comfort of your own home.

We have a lot to talk about! Are you ready for RealTalk MS??!

___________

Coach David Blatt's Letter About His Primary Progressive MS Diagnosis 1:15

X-Chromosome Gene May Explain Why Women Are Diagnosed With MS 3 Times More Often Than Men 8:29

Your Opportunity to Participate in the Slifka Study 11:54

My Interview with Dr. Ekaterina Dobryakova 14:15

Subscribe to RealTalk MS or Just Ask Alexa 29:14

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

Kessler Foundation

STUDY: The X-Linked Histone Demethylase Kdm6a in CD4+ T Lymphocytes Modulates Autoimmunity

Participate in the Slifka Study

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 104
Hosted By: Jon Strum
Guest: Dr. Ekaterina Dobryakova

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, KesslerFdn, Coach_Blatt, UCLA, RealTalkMS

Episode 105: BBQ For MS? It’s the Southern Smoke Festival with Chris Shepherd

Episode 104: MS Fatigue with Dr. Ekaterina Dobryakova