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Past Podcast Episodes

Episode 73: Making Connections with MSPals Mary Pettigrew


Recent research suggests that loneliness is one more invisible symptom of MS. But social outreach and interaction have never been more accessible.  My guest is Mary Pettigrew, an MS Warrior and social media phenom. In 2014, Mary launched MSPals, a Twitter group that has evolved into a community of more than 5,000 followers. We're talking with Mary about the benefits of connecting online and the importance of finding your creative outlet.

We're also talking about new research on the severity and impact of MS fatigue, along with a new smartphone app designed to improve MS fatigue. We'll tell you about a new way of treating spasticity, and we'll give you the details about a new study that's looking at TeleRehab. We'll even tell you how to sign up for the study!

We have a lot to talk about! Are you ready for RealTalk MS?!

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Severity & Impact of MS Fatigue   2:06

MS TeleCoach App Designed to Improve MS Fatigue  4:31

A New Treatment to Manage Spasticity  6:45

The STEP MS TeleRehab Study  8:17

You Can Participate in the STEP For MS TeleRehab Study  10:23

My Interview with Mary Pettigrew, Founder of MSPals  11:58

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SHARE YOUR FEEDBACK, QUESTIONS, AND IDEAS

Email: jonstrum@RealTalkMS.com

Phone: (310) 526-2283

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Prevalence of Fatigue and Its Association with Clinical Features in Progressive and Non-Progressive Forms of Multiple Sclerosis

Improving Fatigue in Multiple Sclerosis by Smartphone-Supported Energy Management: The MS TeleCoach Feasibility Study

Supervised vs Telerehab Exercise program for People With Multiple Sclerosis: Eligibility & Study Sites

iConquer MS

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 73
Hosted By: Jon Strum
Guest: Mary Pettigrew

Tags: MS, MultipleSclerosis, MSResearch, STEPMS, MSPals, RealTalkMS

 

Filed Under: Uncategorized

Episode 72: MS Cognitive Rehabilitation with Dr. Nancy Chiaravalloti


Some people living with MS may find that their attention span is shorter than it used to be, or that it takes them longer to process information. Learning directions can be hard, and decision-making may become more difficult. These are all examples of impaired cognition, or cognitive dysfunction.  Cognitive dysfunction can impact people living with relapsing-remitting MS, and it impacts almost everyone living with progressive MS.

My guest is Dr. Nancy Chiaravalloti, the Director of Neuropsychology and Neuroscience Laboratory and Traumatic Brain Injury Research at Kessler Foundation, and we're discussing Dr. Chiaravalloti's breakthrough work in improving cognitive function for people living with MS, and using MRI to actually see those improvements in the brain.

Dr. Nancy Chiaravalloti

We'll also tell you about some interesting research that revealed what people living with MS consider to be their most important MS treatment goals, you'll hear about a new discovery that explains why the connection between the gut and MS might be really important, we'll talk some more about the importance of an MS Caregiver Protocol, and we'll tell you how you can participate in a new MS research study.

We have a lot to talk about! Are you ready for RealTalk MS?!
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The Things We'll Be Talking About in 2019   :24

Some Surprising Patient Preferences When it Comes to Assessing MS Treatment  3:17

Gut Immune Cells Cut Inflammation in MS  7:58

The Importance of an MS Caregiver Protocol  10:22

You Can Participate in an Upcoming MS Research Study  12:37

My Interview with Dr. Nancy Chiaravalloti  14:55

___________

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Evaluation of a Novel Preference Assessment Tool for Patients with Multiple Sclerosis

Recirculating Intestinal IgA-Producing Cells Regulate Neuroinflammation via IL-10

Feasibility of Web-based CBT-I Intervention in Individuals with Multiple Sclerosis

Kessler Foundation

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 72
Hosted By: Jon Strum
Guest: Dr. Nancy Chiaravalloti

Tags: MS, MultipleSclerosis, MSResearch, KesslerFdn, RealTalkMS

 

Filed Under: Uncategorized

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