Past Podcast Episodes

Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society.

Joining me to talk about what this study revealed and what it means to individuals and families affected by MS are Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, and the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente.

We're also talking about a study that reveals a connection between MS severity and geography.

Have you ever wondered why some people develop severe MS while others don't? We're sharing the details of a study that's hoping to answer that question.

And if you're a caregiver for someone who's living with MS, or you're a healthcare provider who interacts with MS caregivers, or you're a researcher interested in MS caregivers, we'll explain why iConquer MS would like just a few minutes of your time.

We have a lot to talk about! Are you ready for RealTalk MS??!

Measuring the financial impact of MS :22

A study shows MS severity correlates to geographic latitude 1:47

A new study will try to understand why some people develop severe MS while others don't 4:13

iConquer MS is expanding to include MS caregivers but first they need your help 7:26

Dr. Bruce Bebo and Bari Talente break down the results of a study that focused on the cost of living with MS 9:56

Share this episode 29:04

Download the RealTalk MS app for your iOS or Android device 29:25

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Just copy this link & paste it into your text or email: https://realtalkms.com/243

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Economic Burden of Multiple Sclerosis in the United States: Estimate of Direct and Indirect Costs
https://n.neurology.org/content/early/2022/04/13/WNL.0000000000200150

STUDY: Association of Latitude and Exposure to Ultraviolet B Radiation With Severity of Multiple Sclerosis: An International Registry Study
https://n.neurology.org/content/early/2022/04/11/WNL.0000000000200545

University at Buffalo Multiple Sclerosis Research Challenge: Contribute to the CASA-MS Study
https://crowdfunding.buffalo.edu/project/29733

iConquer MS Survey for MS Caregivers
https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers
https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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RealTalk MS Episode 243
Guests: Dr. Bruce Bebo and Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Mask mandates have mostly ended, and bars, restaurants, public buildings, and other businesses no longer require proof of vaccination. It looks like the COVID-19 pandemic is over. Except for the fact that we're seeing cases of the latest COVID subvariant continue to rise in cities across the country and around the world. So, how do we navigate this post-pandemic world? And if you happen to be immunocompromised, how do you stay safe?

Dr. Nancy Sicotte

Joining me as she has throughout the pandemic, with an update including the steps you can take to stay safe as the world re-opens is Dr. Nancy Sicotte. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the National MS Society's National Medical Advisory Committee and she leads the MS Society's COVID-19 Advisory Group.

We're also talking about a workshop that brought together a group of global experts to weigh in on autologous hematopoietic stem cell transplantation (aHSCT) as a viable treatment for MS.

We're sharing the details about an upcoming clinical trial that will test a myelin-restoring treatment for people with relapsing-remitting MS.

Evidence from multiple studies shows that members of the Black and Hispanic communities who live with MS can experience a more severe disease course and a higher disability burden. We'll share the details of a presentation from the Academy of American Neurology annual meeting that sheds new light on what may be driving these disparities.

And we'll tell you how you can register to participate in the National African-Americans with MS Registry.

We have a lot to talk about! Are you ready for RealTalk MS??!

Welcome to the Next Normal! :22

ECTRIMS hosts an Autologous Hematopoietic Stem Cell Transplantation (aHSCT) workshop 1:45

FDA Approves clinical trial for a myelin-restoring treatment 6:04

New data may explain racial and ethnic disparities in MS disease severity and treatment 7:45

The National African Americans with MS Registry 10:13

Dr. Nancy Sicotte explains what people with MS need to know to stay safe as they re-enter a post-pandemic world 11:52

Share this episode 32:31

Download the RealTalk MS app for your iOS or Android device 32:51

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/242

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

ECTRIMS Focused Workshop: Autologous Hematopoietic Stem Cell Transplantation For Treatment of MS and Related Diseases
https://ectrims.eu/ongoing-educational-programmes/focused-workshops

National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS
https://nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a

National African Americans with MS Registry
https://www.naamsr.org